Thursday, 23 September 2010

WOYWW - 22 September 2010 (but on Thursday)!!!

Hi there, i didn't want to miss out by not doing it for two weeks on the trot.  Last week I'd been concentrating on an interview scheduled for the following day on my second session back at work. 

This is a long post, so unless you have a spare 20 mins… hop away right now!!!


I thought I would start with the desk, of course.  It’s not tidy.  Remnants of baby card making.  The paper with the coloured hearts on is a colour chart from Pink Petticoat which is extremely useful when you have some of Liz’s colour collections – very nice and makes it easier to put matching colours and DP’s together.  The box of dew drop inks has my latest purchase if Momento Brilliance inks in- from QVC.  I bought a set of 24 for something like £27 on 2 easy payments – and they were really worth the money.  You would not believe the metallic colours OMG – they are de-lish.  I already had a couple of collections of momento dew drop inks, including chalk pigment inks and have just put them all in one place in this plastic box.

You may spy that I have an ATG gun on my desk too.  I’ve wanted one for ages and succumbed the other day when 3M had theirs on sale at a mega price of £11.59 and free delivery.  

I received it Monday and set it up following a video they have on the same web page.  Good to go… well, no actually.  The used bit of tape should wrap round a second spool, but mine hasn’t been doing it.  I looked at the video again – and it was set up absolutely correctly – but, the middle of the second spool in mine was loose and a spring came out.  It wasn’t broken – just looked like it hadn’t caught under two tabs properly when assembled so I called them yesterday and explained that the tape was coming back out the front of the gun and I kept having to manually rewind it every 10 inches of use or so.  He said that he’d send me a new one out in the post because it was clearly faulty.  I asked how I was to send the other one back, but he said to just throw it away as it would cost more to do the paperwork and collect it than not.  So I might get Darren to have a look at it to see if he can take it to pieces and mend it.  If not, I’ve not lost anything have I?
Now, there’s not much else going on, on the desk – but if you spy anything you want explaining – just get in touch – I’m always happy to tell!!!

Now… back to me telling you about going back to work and my second afternoon session last Thursday.  When I got there, I had an assessment to see if my chair current would be suitable for my needs and comfortable to sit in, and it was clear to the H&S guy that it wasn't.  Getting in and out of the chair really did not help my pain and as a result of that, the interview couldn't take place as I was deemed as not fit enough to attend and be interviewed.  

Also, I was advised to go back to the doctors as I clearly wasn't well enough to be back at work.  So another visit to the Doctors on Friday, and he signed me off work again.  He also changed one of my meds again (he’d only increased them last Friday but they’d made no difference) as I said that I couldn't cope with that level of pain any more.  He stopped Gabapentin (big orange ones) and prescribed Pregabalin on the advice of the pain specialist in his letter to the doc following my visit there in August.  Anyway, when I went to the doctor, I asked him if he would write to the pain clinic and bring my next appointment forward for the trial of the TENS machine.  He said he wanted to try out the other things that the pain specialist had suggested first, starting with the meds, which I have to allow 2 weeks to make a difference, then he'd got a patch that I could try after that.  He did say that if I wanted to call the pain clinic myself and see if I could add myself to the cancellation list - I may get in quicker.

When I came back from the doctors, I called the pain clinic, explained my situation and that with work and they added me to the list.  Then I had a mixed weekend not doing much.

Monday morning, I received a call from the hospital saying they’d just had a cancellation for a TENS machine trial – could I make the appointment for 2pm.  Of course I said yes, as I’m getting pretty desperate.

I got to the clinic; DS came with me as he drove.  Went in to the room and discussed my pain to the clinic nurse (no consultant this time) who was to do the trial.  She explained that they have to put the pads on the nerve path to block the pain message getting to the brain and allow the TENS machine vibration feeling override it.  I explained how sensitive the skin is around that area, the only way I can explain it is that it feels like bad sunburn or as if the cat has scratched me.  I can’t bear it to be touched.  Because of this, she said it was highly unlikely that I’d be able to stand the vibrations from the machine and the pads stuck to me.  She tested it on my opposite arm to show me how the vibrations were.  She set it on the lowest setting – which was really strong.  She said for it to have any effect on me, it would have to be turned on to the highest setting.  I just knew I’d not be able to tolerate it.  She said that it was likely to cause more pain than it would stop, so wasn’t a suitable option for me.  She went to double check with the Consultant who was with someone else.  He agreed that it wasn’t suitable for me. 

I was well concerned by this point because I don’t want to face however long feeling how I feel – particularly on the bad days – which are unbearable to the point I feel physically sick with pain.  I asked what would happen now then, so the nurse read my notes and said apart from the other two options of different meds and the patch that was in the letter to my doctor following the previous visit; she said it looked likely that the nerve block option would be next.  I asked her if the previous consultant had written anything up about the prognosis he’d given me – when he’d told me that it could be 2-3 years before I started to feel any improvement – or even never.  The nurse said he’d not written anything and that he shouldn’t really have given me a prognosis because there is no cure for the nerve damage I have, the pain clinic would just help me manage it or help control the pain – they are not there to cure it.

So, I went away from the clinic disappointed, but grateful that I knew now and wasn’t holding out until my original appointment in November.   My next appointment isn’t until January 2011.

I’ve been for blood tests today just to keep an eye on my liver function.  Also, I’m being tested for arthritis as I’ve been having terrible problems with my joints and hands.  This has been going on for about 5 years or so now, but the Gabapentin I was on made it far worse than I’ve ever had it before.  Sometimes I can’t hold a pencil for long if writing, and find it difficult to hold a cloth when cleaning or wiping something so I asked the doctor if he thought it was hereditary because my mum suffers terribly with the same and has osteoarthritis, and so did my grandma.

On a lighter note to all that miserable stuff above, I’ve been reading the side effects of my latest meds and been having a bit of a giggle because some of them are sooo happening to me and obviously are way beyond my control… some of them I haven’t got either!!!:

They MIGHT:
Make me develop a funny walk, make me have trouble getting my words out or finding the right words(Check) , memory impairment (check), insomnia (check), vertigo, dry mouth (Check), flatulence, swelling of the extremities, disturbance in attention (Check), lethargy(zzzzz), flushing and hot flushes (had a couple today), muscle twitching (check), difficulties with erection (not yet LOL)!!!!

Anyway, there you have it; my week to date.  Hope yours was better.

If you want to show your desk (like I did at the start of this post), go over to Julia at the Stamping Ground, and she’ll explain the drill.  It’s fun and is spreading across the globe and a brill way to make some fantastic blogging friends.  I have.

If none of this post makes sense - read para above - and blame it on the meds... I do!!! LOL

Thanks for reading - please leave a comment to say you've been - then come back again. hugs, Paula x x x

16 comments:

  1. did I lose my last post?? Oh no, dont say that! Let me know if youve got it!

    Keryn x

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  2. Hi Paula, sorry things are not looking too good. Let's hope the nerve blocker works and the new meds help in the meantime. At least you're still able to have a bit of a laugh. I'm glad you're off work again too!
    Anne xx

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  3. oh paula!! you do make me giggle hun!! I hope everything starts to work soon hun and you are a bit more pain free, keeping my fingers crossed that you don't have any erection problems!!!! romfl!!!!! hugs Lou xxx

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  4. Hi Paula, I've been MIA from WOYWW for ages, just not enough hours etc!! However, saw your post and thought I'd say hi!! Sorry that you've not had the greatest news re your pain management!! A very gentle but big hug for you!! Juliexxx

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  5. Hi Paula, sending you hugs to cheer you up

    {{{{{{{hugs}}}}}}}

    xx

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  6. Hi Paula, What can I say? Words just not enough so I'm sending you hugs instead. Take care and shout if you need a friend.
    A x

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  7. Hello Paula, I'm sending you a big gentle hug. Sorry to hear that you are still so much in pain. Take care. Kathleen x

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  8. So glad you still manage to see the funny side - You are a gem and I am sending my little rainbow to cheer you up x x JO

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  9. aw, poor you Paula, been there too, pain Doctor is rubbish! You can have my CD if you want! I was told the same, about the nerve blocker thingy, it might work, it might not..not might make it worse. They really don't seem to know anything. Have you had 'the questionnaire' yet?
    anyway!!! love your card and of course your draws!!
    have a good woyww!
    ((Lyn))

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  10. Hi Paula!

    Sorry you are still not feeling better...I hope that some sort of med will be found that will help you with the pain!
    Your desk is quite busy so at least you can make cards!
    Thinking of you!
    Hugs,
    Cardarian

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  11. oh poor you, such a shame about the tens i used one in my late pregnancy and through labour and it was great but the patches were rather uncomfortable, hope things improve for you, its good the doc signed you off as your clearly not ready for work, hope the meds work (((hugs))) of the gentle sort coming your way xxx

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  12. Feel for you, similar problem - have a bowel probelm & after 8 ops have been told the will never heal and due to the amount of ops have alot of nerve damage - it is so hard to explain to people how it feels and the effects it has on you. This will sound funny but the day my consultant told me the pain was here to stay life improved - I knew I had to get on with it and make the most. I know how you feel day after day in pain but stay positive - it really does help x

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  13. OMG ...what a week you have endured ...Candace is probably right that now you know whats what you now need to find a way of coping and staying positive.I do hope you manage to get some relief ...we really cant imagine what you are going through ....stay strong ...loads of gentle hugs xx

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  14. OK, guess I really DIDN't see this post. Now who needs to check for memory loss.

    Crap (or flatulence at least), I can't believe you can't sit for an interview, can't sit to determine if your chair is correct or adding to the pain, but you are cleared to return to work. What is WRONG with those people?

    Not sure what a TENS is, but I'll see if I can find it through an internet search. I'm glad to see they haven't taken away your ability to smile, look on the bright side of life, and share your art with us snoops. See you again on Wednesday.

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  15. Love thes desk and love the description of yourself where you said noone in the family is interested in my creations - so with you on that one - noone in my family is either...sad posting - but happy in a way - stick with it and I am sure it will be better round the corner..

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  16. Thanks for stopping by my place this week, even though you are not playing this week in WOYWW. I didn't even recognize your new photo at first. Lovely photo and so are you!

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Thank you for your super scrummy spangly comment and for spending your valuable time letting me know what you think...

Crafty hugs, Paula x x x

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